Get Involved

  • Donate

    Your contributions help fund critical research and advocate for better care. Every donation, big or small, brings us one step closer to better treatments and, hopefully, a cure.

  • Spread Awareness

    Help us reach more people by sharing information about DAND on social media, in your community, and with healthcare professionals. Raising awareness leads to earlier diagnoses and better support for those affected.

  • Fundraise

    Get creative and help raise funds to support DAND research and advocacy.  Host a fundraiser in your community, start an online crowdfunding campaign, or organize an event like a charity run, bake sale, or auction. Every dollar raised helps advance research and provide resources for those affected.


    Need ideas? We’re here to help. Contact us at info@thedandalliance.org to get started!

  • Advocate for Change

    Improve policies and healthcare resources for those affected by DAND. Contact local representatives, support rare disease legislation, and push for better research funding.


    Find your local representative here.

  • Shop for a Cause (coming soon!)

    Support DAND while spreading awareness! Browse our online shop for apparel, accessories, and other items that help fund research and advocacy efforts. Every purchase contributes to our mission and helps spark conversations about DAND. Check back to see our online shop—coming soon.

  • Attend or Host an Event

    Join us for awareness events, fundraisers and community gatherings. Whether it’s a virtual webinar, an in-person benefit, or a local meeting, events bring people together to support the DAND community. Stay updated on upcoming events by joining our email list.


    Together, we can make a difference. Get started today by donating or contacting us at info@thedandalliance.org to learn more!